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Click a tab below to see organizations and download educational materials.

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Connect with organizations

The following groups, organizations, and websites may be of interest to you and your family.

The information on the following websites may reflect the opinions of individuals who are not licensed healthcare providers or experts in TGCT. It’s important to keep this in mind and to talk with your healthcare provider before making any decisions about your care or changes to your treatment.

CancerCare

CancerCare

The leading national organization providing free, professional support services, including counseling, support groups, educational workshops, publications, and financial assistance, to anyone affected by cancer. All CancerCare services are provided by oncology social workers and world-leading cancer experts.

National Organization for Rare Disorders (NORD)

A patient advocacy organization for people with rare diseases, as well as the organizations that serve them. Offers services for patients, medical resources,
and more.

sarcoma-alloance

Sarcoma Alliance

Helps improve the lives of people affected by sarcoma. Provides resources that help people access quality care, guidance, educational materials, and emotional support.

euronet

Sarcoma Patients EuroNet (SPAEN)

The international network of Sarcoma, GIST, and Desmoid Patient Advocacy Groups aims to improve the situation for sarcoma patients around the world by providing information and support and by raising awareness of sarcomas.

TGCT Support

Enhances treatment options and quality of life for patients who have TGCT through patient-powered research, education, empowerment, and global advocacy efforts.
A program of The Life Raft Group, which is a nonprofit organization providing
support to patients with rare diseases through information, education, and innovative research.

Fast-fact sheets

Download these informative, simple sheets to help you understand diffuse and localized TGCT.

Diffuse TGCT fast facts

This handy resource provides key facts
about diffuse TGCT and can be
used to support your discussions with
your doctor about your condition.

Download
Localized TGCT fast facts

This handy resource provides key facts
about localized TGCT and can be
used to support your discussions with
your doctor about your condition.

Download
Discussion guides

Medical oncologists, orthopedic oncologists, and orthopedic surgeons may be
involved in your treatment. During your next appointment, you may find it helpful to use
a discussion guide when speaking with your specialist. Each of the discussion guides below
is for use with a specific specialist. The guides include basic information and common
questions about TGCT treatment, as well as space for you to make notes. Choose your guide
based on the specialist you are planning to visit, then print it, take it with you to your
next appointment, and use it to ask questions and take notes.

Orthopedic oncologists Download
Medical oncologists Download
Orthopedic surgeons Download
My TGCT treatment history

Because multiple specialists may be involved in your treatment for TGCT, you may find it
helpful to keep track of which doctor you saw and what took place at each appointment.
Download this interactive PDF and use it to record notes about your TGCT treatment.

Download