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A team approach may help your doctors better understand your specific health challenges. Throughout your experience with TGCT, various healthcare experts may provide care. These specialists may include those described in the following paragraphs.

Advanced practitioners

Nurse practitioners and physician assistants who specialize in oncology or orthopedics may have the expertise to provide treatment and long-term care to patients with TGCT that is recurrent, diffuse, or difficult to treat. These advanced practitioners may perform exams, order and evaluate laboratory tests, and provide pre- and post-treatment patient education.

Hand surgeons

Localized TGCT occurs most often in the hand. Patients with small, localized tumors in the hand may be referred to hand surgeons for their expert knowledge and skill set.

Oncologists

Oncologists are doctors who diagnose and treat tumors, including some types of TGCT. Medical oncologists may be involved in diagnosing TGCT. Orthopedic oncologists also may be involved in diagnosing TGCT and performing surgery for it. Oncology nurses also may care for patients who have TGCT.

Discussion guides

Download and print the appropriate discussion guide for the type of oncologist you plan to visit. A discussion guide may help facilitate your conversation.

Orthopedic surgeons

Orthopedic surgeons diagnose and treat disorders of the bones, joints, ligaments, tendons, and muscles. They are trained in managing joint problems. Patients diagnosed with TGCT or those who have symptoms of TGCT may seek out or be referred to orthopedic surgeons for their expert knowledge.

Discussion guide

Download and print this discussion guide to help facilitate the conversation with your orthopedic surgeon.

Pain management specialists

Specialists who treat pain may include physicians, nurses, psychologists, or rehabilitation specialists. Talk with your healthcare team to find a pain specialist.

Pathologists

Pathologists evaluate samples of tissues or bodily fluids. They check for the presence of certain substances. This work helps doctors diagnose and manage TGCT.

Physical therapists and rehabilitation specialists

These specialists may play a role in diagnosing TGCT. They also may help patients with recovery after surgery.

Radiologists

Radiologists perform tests and evaluate their results. The tests may include X-rays, magnetic resonance imaging (MRI),
and ultrasound.

team based care

You need a holistic approacha “PVNS is not something that’s going to be handled by a single doctor. You need a more holistic approach to guide you to putting together the appropriate team.” —Woman with recurrent, diffuse TGCT in ankle

a TGCT impacts everyone differently. This information is not meant to reflect the experience of all patients who have TGCT.

Sarcoma specialists for managing TGCT that is hard to treat

Many cases of TGCT can be cured with one surgery. If tumors come back again and again, adding a sarcoma specialist to the healthcare team may make a positive difference.

Guidelines from the National Comprehensive Cancer Network® (NCCN)* recommend that a team of healthcare experts and specialists evaluate and monitor patients who have TGCT. The team should have both expertise and experience in treating sarcomas. Sarcomas are tumors that start in cells of bones or connective tissues (like muscle and fat).

Referenced with permission from the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®) for Soft Tissue Sarcoma V.1.2021. © National Comprehensive Cancer Network, Inc. 2020. All rights reserved. Accessed December 23, 2020. To view the most recent and complete version of the guideline, go online to NCCN.org. NCCN makes no warranties of any kind whatsoever regarding their content, use or application and disclaims any responsibility for their application or use in any way.